I’m going to share something with you that I don’t tell very many people.
I have Systemic Lupus Erythematosus, otherwise known as SLE, or simply, Lupus.
Lupus is a chronic autoimmune disease, which basically means my body is attacking itself and I’m pretty much stuck with it.
The reason why I want to share this with you is because I’ve been gleaning some valuable insights about running a small business with a chronic illness. Surprisingly, I’m beginning to see my disease as a sort of blessing in disguise; as much as I hate having Lupus, it has made me into a better business owner, designer, and person.
But first, for those that don’t know, a little backstory into my illness.
I’ve been managing it for about 4 years now, under the care of rheumatologists. Luckily my case is pretty moderate: some people can’t even get out of bed, they’re so sick.
The most common things I have to deal with are fatigue, headache, nausea, hair loss, muscle aches, sore joints, and memory and concentration issues. But it still affects my life and my business, and every day is a struggle.
Yet I am grateful for this stupid disease.
Better boundaries
For one, it’s forced me to set better boundaries.
Since each day I have a finite amount of energy to expend, I have to choose where it goes wisely. This means saying “no” to taking on more projects than I can handle.
I used to be a huge people pleaser, and hated disappointing people. I still do to some degree, but am much more selective now about what projects and clients I take on, which results in better outcomes for everyone.
Taking care of number one
Along with learning boundaries, I’ve also been forced to take better care of myself.
This can be anything from getting enough sleep, eating healthier, getting regular exercise, and being sure to have plenty of down time and relaxation. I’m sure that, if I didn’t have Lupus, I’d run myself into the ground.
I think this is true for everyone, but it’s hard to take care of others if you don’t take care of yourself first. When I’m well rested and relaxed, I manage my business better and produce better design.
Walking a mile in someone else’s shoes
Another thing that Lupus taught me, which helps me run a strong business, is to be more empathetic with clients.
Since my disease is invisible—I look perfectly healthy on the outside—others probably assume I’m fine when really I’m not. People don’t know that the reason I might be a little grumpy one day is because I feel like crap.
It’s a good reminder not to judge others if they’re not on their best behavior; I never know what they’re dealing with or what is going on in their personal lives. Giving my clients the benefit of the doubt has helped a lot in many situations.
What doesn’t kill you…
Lupus has also shown me that I’m stronger that I think I am. I know I certainly don’t feel very strong most of the time, especially when dealing with bouts of weakness or fatigue.
But just going through this, keeping a positive attitude, and not letting Lupus win has made me realize I can take a lot more than I previously thought I could handle. This comes in handy when dealing with tough business situations (or clients!). I can tell myself, hey, this isn’t as bad as Lupus; I got this.
Lupus is the reason why I’m here
I’ll admit it: if I’ve never been diagnosed with Lupus, I probably wouldn’t be running my own graphic design business. Really.
When I first went to school for design, I imagined myself in some swanky New York advertising firm. À la Mad Men style, minus the sexism and cigarettes.
Now I know I could never hold down a regular 9-5 job; it’s just too stressful and is too hard on my body. Because of my chronic illness I must work from home, and make my own hours. And it’s wonderful and I love it.
May is Lupus Awareness Month.
Now you know what it is, so you’re aware. Spread the word about this disease; who knows, maybe there’s someone in your life who could use some encouragement that Lupus isn’t the end of the world.
I know for me, it wasn’t the end of the world, but the start of something better.
15 Comments. Leave new
Sheila,
What a great article. Everything you said resonates with me. I, as well, believe that I am a better business owner, doctor and person because of my life with Lupus. Thanks for sharing.
Hi Jamie! I’m glad to hear my story resonates with others, and that you’ve also come to terms with Lupus. Good luck on your continued journey, thanks so much for reading!
Jamie,
I have lived with lupus for over 30 years and completely agree with you. I don’t consider the lupus a gift…I refer to it as the gift I’d return the day after Christmas, but I too have learned a great deal from having the disease. It has shaped my life in incredible ways and I believe made me a stronger and I like to think, kinder person. Keep up your great work and best to you always!!!!!
Thank you so very much for sharing. I was only recently diagnosed (less than a year) and have been struggling with those same things you mentioned in trying to advance my career and continue to produce quality creative work. Your words are so encouraging to me and I really appreciate knowing that “Lupus isn’t going to win.”
Awesome! Thanks for sharing your story. I’ve been living with Lupus since 1996 while working as a child welfare social worker. I never wanted to give in to it, but the final tipping point came last year and put me down.
I’m a much better practitioner, holistic social worker, radio talk show host, wife, sister, friend and business owner now that I embraced my Strength. I would love to have you as a guest on my radio show.
Hi Pia! I’m so glad to hear that you’ve turned this tragic disease around in your life and are stronger now because of it! 🙂
Yes I’d love to be on your show, feel free to email with more details. Thanks so much for reading and sharing!
Thanks for posting this Sheila. That was a very refreshing perspective and a great reminder to understand where others might be coming from on any given day.
Hi Chris, thanks for reading! 🙂
I also have Lupus.. Since I was a teenager… Now 62, but I remain busy and hard at work with my cookie business. I have heard that Lupus patients are traditionally over achievers, and I don’t know why this is, but certainly in my case, it might well be true. I am a graphic designer, own my own cookie business and work solo except for baking, my husband does that. I have a fairly demanding schedule every day, but find the time to do watercolors as well way I to the night when I have a few moments. I am trying to break into illustration, which is what I was originally studying at SVA years ago, and would like to leave the cookie business to someone else.
It is my experience that work keeps my mind off of pain and constant ailments, which become more of a ‘pain in the ass’ than anything else. When my mind is busy with creating, I have no time for pain. It works, so far.. For the past 40 something years.
Hi Christine, thanks for reading! It’s encouraging to hear that you’ve been able to live and work with Lupus for so long.
You’re right, it’s good to stay busy, have something to keep our minds off the pain. Just remember, to take some down time every once in a while! 🙂
I loved this, I’ve been working on my own business and advocating Lupus. I’ve used this illness to show others that they can do anything they set their minds to. If I can do it so can you. I started college in 2008, took some time off due to lupus and now about to graduate finally August 2014 with a bachelors degree. I plan to continue on to a doctoral program.
Hi Rosalyn, thanks for commenting! Great points, and congratulations on graduating with your bachelors!
I loved the story. I applaud your attitude and fortitude. I have fibro as well, and need knee replacement, so I am a little more disabled right now, just right now. I used to be a paralegal and I miss the environment so much. I also miss the outdoor fun I used to have.
I wish you continued success in your business. Thanks for the article. I have shared it on Face Book in the Fibromyalgia groups, as we often share the same diseases.
Thank you for your kind words, Rene! So sorry to hear about your fibro and knee replacement. I hope you’ll soon be able to enjoy the activities you used to. Hang in there! 🙂
What a fantastic, honest article! As a fellow autoimmune disease sufferer (Hashimotos for me), this certainly hits home. I’m naturally one to take on way too much at once, and I’m still learning to balance what I want to throw myself into with what’s best for me and my body.
I currently still have a full time “day job” and my design work is freelance in my spare time. I’m also a full time student, having gone back to complete a degree about a decade later than most people. I’m working towards being wholely self-employed so that I can better fit my career to my life.
Having a chronic invisible illness can be very frustrating at time, to be sure, but it’s a great teacher of patience, humility, and compassion.